Use the information and support resources provided to help with the next steps for continuing life without a diagnosis.
Staying
Up to Date
Assistance to guide searching for information about an undiagnosed disease.
Read moreOngoing
Management
Managing and tracking signs/symptoms, requesting retesting, health care records and general information about choosing therapies.
Read moreCommunication
Help with passing on information regarding health, educational and psychosocial needs.
Read moreEveryday Life
Guidance and support for individuals and families living with an undiagnosed disease.
Read moreResearch & Registries
Find out about research opportunities and registries to collect information.
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