Roadmap No diagnosis Research & Registries
Back to roadmapSome people with undiagnosed conditions are able to participate in research relating to signs and symptoms and/or share information through a registry, which can help build further knowledge about diagnosing rare conditions.
Resources
- https://www.udninternational.org/en-ricerca_patients
- https://rarediseases.org/for-patients-and-families/information-resources/patient-and-caregiver-resource-center/undiagnosed-rare-disease-patients/
- https://www.clinicaltrials.gov/
- https://www.australianclinicaltrials.gov.au/
Suggest a resource: send email to gcwg@udninternational.org