Roadmap No diagnosis Staying Up To Date
Back to roadmapHow to search for information by signs and symptoms
Searching for accurate and reliable information among many online sources can be a very difficult task, particularly in the absence of a diagnosis.
Working with your/your child’s managing health team may help to identify appropriate search terms which accurately reflect specific signs/symptoms. There are guides available to help with the process of searching the scientific literature and how to assess the quality of the information you find. Setting Google/PubMed alerts based on your search terms can be a useful starting point.
Resources
- https://www.nihlibrary.nih.gov/services/systematic-review-service/literature-search-databases-and-gray-literature
- https://medlineplus.gov/webeval/webeval.html
- https://mygene2.org/MyGene2/families
- https://www.undiagnosed.org.uk/support-information/what-does-swan-or-being-undiagnosed-mean/
Suggest a resource: send email to gcwg@udninternational.org