Resources
Use the information and support resources provided to help with taking the next steps beyond receiving a rare diagnosis or continuing life without a diagnosis.
After the journey to find an answer, receiving a rare diagnosis can be a time of mixed feelings and more questions. Although information and support specific to the diagnosis is often limited, general resources can help with many aspects of daily life as well as next steps beyond the search [...]
View the roadmapMany children and adults remain without a diagnosis despite multiple assessments and investigations. General resources can help with many aspects of daily life as well as taking steps forward, even without an identified cause for signs/symptoms [...]
View the roadmapThe credibility and relevance of each resource is verified based on the following criteria: